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I have been following Jonah and his family for almost a year now! This family has gone through things that no family should have to ever experience. Jonah has EB. I had never heard of this disease before Jonah. The disease presents many different problems for the child and their caregivers. I am not a doctor and don't have enough knowledge about the disease to teach about it. If you want more information Please go to Johan's blog-site. Let's all do our best to support this family and DEBRA.

Thanks!

Jenny